NYLA is a five-year-old fashionista with a rare condition called ichthyosis - this means her skin grows too fast. Nyla, who’s from LA, is also at risk of overheating because she cannot sweat and it’s important that she bathes several times per day to clear away excess skin. Fortunately she loves bath time and her condition certainly doesn’t stop her from being a fashion icon. She’s full of confidence and knows how to strike a confident pose. If she isn’t painting her nails or shopping for clothes she’s probably modelling her trendy outfits in front of the camera. Nyla lives with her mother, stepfather and brother. She’s also very close to her grandma and aunt who helped look after her growing up. https://www.instagram.com/ichthyosis_fashionista/
